Saturday, May 9, 2009

Thursday, March 19, 2009

Happy 5 1/2 months Rebecca!





Rebecca is doing really well. She still has the g-tube and has her good days and not so good of days with feedings.
Last week, the family had a 10 lbs party with cupcakes and candles for Rebecca. We sang Happy 10 pound Birthday! Although, 10 lbs is behind where she should be, I see it as progress!

Rebecca's little personality melts your heart. I continue to get choked up at least once a day when she smiles. Usually, anytime of day, Rebecca will give you the biggest ear to ear smile that you have ever seen a baby give! She is already a Daddy's girl, they have an adorable special bond. Carson and Joy get some good coo's from Rebecca as well.

At Rebecca's last Cardiologist appointment, everything looked good and the Doctor does not see that we will have to repair Rebecca's bi-cuspid valve anytime soon. We do have her checked once a month to make sure no severe changes have taken place. Our next goal, 15 lbs here we come!

Saturday, January 17, 2009

Home Again!


Baby Rebecca had to have two blood transfusions which held up the discharge process but now Rebecca is home! She was discharged at 5 pm today. She is in a little pain but otherwise we think she is happy to be home. It's amazing that she was in a 4 hour surgery yesterday and was able to come home today.

Friday, January 16, 2009

New Information



Rebecca has been home for almost a full 2 months and she continues to get better. Rebecca is feeding well and gaining weight, very slowly but, gaining. On 12/19, we learned that Rebecca was going to have two heart issues addressed. 1). The arch area that was repaired has some narrowing (it could be built up scar tissue from her heart surgery) and has restricted blood flow. 2). Baby Rebecca was born with a bicuspid aortic valve, (another area where there is restricted blood flow).
Today, Rebecca went in for a cardiac catheterization. This was a 4 hour procedure. It was not expected to take this long but it did.
All went well. The doctors said that Baby Rebecca will eventually have to have the Aortic Valve replaced but, we will face that when the time comes. In the meantime, we have crossed another emotional bridge. Thank you God! Rebecca was resting well before Dennis and I left to get something to eat. Doctors were getting ready to do a blood transfusion due to Rebecca's low hemoglobin count. The transfusion is something that will only help her. We hope to have her home by the end of the weekend.
Please continue to keep Baby Rebecca in your thoughts and prayers.