Monday, January 18, 2010
Rebecca is doing fantastic! She is an amazing little girl who brings so much joy to our household.
She turned 1 on September 28, 2009. She is now going on 16 months. She is scooting around (not the traditional crawl but that's okay) very fast! She is pulling herself up and starting to take steps. Although Rebecca is delayed by approx. 6 months or so, cognitively she is fine. She is really a miracle girl!
The cardiologist thinks Rebecca's bicuspid valve surgery will not be needed for at least a year plus. We are very thankful for that!
Rebecca's G-tube was removed on December 7th. She is gaining weight slowly but at least gaining. She weighs close to 17 lbs.
Thank you all for continued prayers.
Thursday, March 19, 2009
Rebecca is doing really well. She still has the g-tube and has her good days and not so good of days with feedings.
Last week, the family had a 10 lbs party with cupcakes and candles for Rebecca. We sang Happy 10 pound Birthday! Although, 10 lbs is behind where she should be, I see it as progress!
Rebecca's little personality melts your heart. I continue to get choked up at least once a day when she smiles. Usually, anytime of day, Rebecca will give you the biggest ear to ear smile that you have ever seen a baby give! She is already a Daddy's girl, they have an adorable special bond. Carson and Joy get some good coo's from Rebecca as well.
At Rebecca's last Cardiologist appointment, everything looked good and the Doctor does not see that we will have to repair Rebecca's bi-cuspid valve anytime soon. We do have her checked once a month to make sure no severe changes have taken place. Our next goal, 15 lbs here we come!
Saturday, January 17, 2009
Baby Rebecca had to have two blood transfusions which held up the discharge process but now Rebecca is home! She was discharged at 5 pm today. She is in a little pain but otherwise we think she is happy to be home. It's amazing that she was in a 4 hour surgery yesterday and was able to come home today.
Friday, January 16, 2009
Rebecca has been home for almost a full 2 months and she continues to get better. Rebecca is feeding well and gaining weight, very slowly but, gaining. On 12/19, we learned that Rebecca was going to have two heart issues addressed. 1). The arch area that was repaired has some narrowing (it could be built up scar tissue from her heart surgery) and has restricted blood flow. 2). Baby Rebecca was born with a bicuspid aortic valve, (another area where there is restricted blood flow).
Today, Rebecca went in for a cardiac catheterization. This was a 4 hour procedure. It was not expected to take this long but it did.
All went well. The doctors said that Baby Rebecca will eventually have to have the Aortic Valve replaced but, we will face that when the time comes. In the meantime, we have crossed another emotional bridge. Thank you God! Rebecca was resting well before Dennis and I left to get something to eat. Doctors were getting ready to do a blood transfusion due to Rebecca's low hemoglobin count. The transfusion is something that will only help her. We hope to have her home by the end of the weekend.
Please continue to keep Baby Rebecca in your thoughts and prayers.
Tuesday, December 9, 2008
Baby Rebecca is doing well. We have had a scare or two, ready to walk out the door headed to the ER room however, things seemed to take a turn for the better. We have not used the G-tube very often because we are determined to get it out as soon as possible. Tomorrow we will find out how Rebecca is measuring up on the weight scale and where she needs to be. It's a lot of pressure! Now that Rebecca's heart is okay we can deal.
One of my OBGYN doctors saw Baby Rebecca last week and all she could do is cry. She called her, "The Miracle Baby." It's still a continued journey of taking one day at a time. She is precious and I am still in awe of her presence.